Logo
Donate
Keep in Touch

Author: Sandy Tosta

Home/Articles Posted by Sandy Tosta

See What A Difference Color Has Made For Our Scholarship Recipients

ISF SCHOLARSHIP RECIPIENTS: WHERE ARE THEY NOW?
In this post, we catch up with some of our past scholarship recipients to see how receiving Irlen Spectral Filters has changed their lives.

It’s been a busy and rewarding year for the Irlen Syndrome Foundation! We’ve awarded more than 30 scholarships, but we are receiving more requests for aid than we are able to support. We recently launched the Individual Aid Scholarship Campaign, to raise $10,000 to fulfill these requests and double the number of people we can help this year. We’re excited to share the following updates on six of our recent scholarship recipients. See how your gift can change the life of someone with Irlen Syndrome.

Traumatic brain injury can cause some of the most severe symptoms of Irlen Syndrome. Here’s Mikayla’s story…

Mikayla “Mac” has suffered from multiple TBIs incurred over the 10 years she worked as a law enforcement officer, both on the job and during recreational activities. She has suffered with light sensitivity, migraines, vertigo, and seizures triggered from flashing lights. These symptoms were so severe, that she was unable to drive and confined herself to dim light indoors so as to mitigate the symptoms. Fortunately, she was able to get assessed and fitted for customized Irlen Spectral Filters with an Irlen Foundation Individual Aid Scholarship. After only a few weeks, she reported that her comfort and functioning level had immediately improved. She reported less fatigue and exhaustion, and is elated that she is finally able to leave her house and spend more time outdoors. All of her frustration and tenseness that resulted from being cooped up all day indoors has disappeared; so much so that her physical therapist noticed a difference right away.  As of May 2017, she said that she still wears them all the time and couldn’t imagine life without them. She is now referring people for Irlen Spectral Filters who are in similar situations. She sends her thanks from Clark, Oregon to all of those who have donated to the Irlen Individual Aid Scholarship program as well as those who continue to help the Irlen Syndrome Foundation spread awareness of Irlen Syndrome!

Research has shown 80% of incarcerated adults suffer from severe Irlen Syndrome. By helping youth in the juvenile justice system, we’re making sure they don’t enter the adult prison population. Here’s an update from the Marion County Juvenile Justice Department in Oregon… 

The following story of one juvenile justice department scholarship recipient reflects the significant challenges that Irlen Syndrome can pose to future success, if left unaddressed. Due to strict confidentiality required by the juvenile justice system, any personally identifying information for this youth has been removed from the testimonial excerpts below, provided by both the scholarship recipient, as well as her educational advocate in the juvenile justice system.

Recipient A is a 17 year old female in the Juvenile Justice System. She lives with her mother and a sibling, and they are on public assistance. She is the only one in the family that works, holding two jobs that equate to 40 hours per week. She participates in a multitude of appointments and has voluntarily engaged in a rigorous program, which will expunge her record, if it is completed successfully. Her goal is to graduate from high school, enter the military, and pursue a career in engineering. However, her difficulties with reading and physical symptoms caused by bright lighting are really holding her back. Her primary symptoms of discomfort included experiencing headaches and a strong sensitivity to fluorescent and bright lighting. As a result, she reported having frequent headaches. When reading, she loses her place, becomes distracted, uses a marker, and has poor comprehension; however, she still earned grades high enough to qualify for honor level coursework. Unfortunately, she failed a reading entrance exam for a particular school program. Prior to discovering her symptoms, her educational advocate was perplexed as to why she earned good grades yet had failed her reading entrance exam. It didn’t make sense, that is, until she reported the severity of her symptoms resulting from Irlen Syndrome. She was provided a peach colored overlay, which she used daily for reading, both with books and with a computer screen. She earned an “A” in a grade-level English literature course. Her educational advocate, seeing the massive improvement in her reading ability, spoke with her and her guardian about Irlen testing and Irlen Spectral Filters. Both were supportive and enthusiastic, as she reported that the use of the overlay has a huge impact in terms of alleviating her reading discomfort and difficulties.

After receiving her Irlen Spectral Filters, Recipient A provided the following update on her progress, “Since I have been wearing my glasses, I don’t get headaches. My eyes don’t hurt. They have helped me feel more comfortable when I am outside or around fluorescent lights. Before I got my glasses, I would have to reread lines. I would also lose my place. Now I don’t have those problems.”

It is important that our veterans return home with full functionality so that they can make the most of the freedoms and opportunities they fought to preserve. Some return home suffering from Irlen-related symptoms as a result of traumatic brain injuries…

Justin, a disabled military veteran, suffered from anxiety and experienced Irlen Syndrome symptoms when he tried to read or was in a bright environment. He was recommended for the Individual Aid Scholarship by his local diagnostician, and, after receiving it, was amazed by the results.

Justin: “I am feeling calmer, more focused, lights don’t bother me in stores, I can read faster, process faster, balance is good, symptoms come back instantly without filters, can now use a cell phone and computer – was unable to for years because the screen bothers me.”

Justin now wants to go back to school at a technical college!

Classroom environments that contain bright fluorescent lights can exacerbate Irlen Syndrome Symptoms, and make school unbearable… 

Moises suffered from extreme light sensitivity and migraines that caused him to miss 95 days of school over the course of 2 years. He constantly struggled in the classroom and was unable to concentrate for long periods of time without breaks. As a result, he fell behind and wasn’t reading at his own grade level. He would regularly take 30-45 minutes breaks when trying to complete school work, in an effort get his symptoms to go away. What should have taken him 1 hour to finish ended up taking him about double the time to complete. Whenever he was asked a question in class, he would walk out of the classroom frustrated and anxious. After being awarded an ISF Scholarship and receiving customized Irlen Spectral Filters, he is finally able to concentrate for longer periods of time and has gained the confidence to articulate his thoughts and participate in classroom discussions!

Leo, an 18 year old student, moved to Washington to support his struggling family. In a stroke of bad luck, he was assaulted. His brain was damaged in the incident and he became partially paralyzed. After his brain injury, he started showing signs of Irlen Syndrome…  

After he recovered from his medical treatments and injuries, Leo tried to go back to school. However, whenever he tried to read textbooks, whiteboards, and other reading materials, his eyes started watering, headaches nagged him incessantly, and he was unable to stay focused for long periods of time. Luckily, two Irlen Screeners worked at his college and provided him with colored overlays. While the overlays provided some relief, they weren’t enough. He still reported dizziness, nauseousness, and overall fatigue when exposed to bright lights. He was recommended for the Individual Aid Scholarship, so he could get Irlen Spectral Filters to protecting his brain from this constant environmental stressor.

Since receiving his Irlen Spectral Filters, Leo reports that his filters “make me happy!” He wears them all day and can participate in life without distortions, getting headaches or becoming dizzy. He is re-enrolling in fall quarter at RTC and wants to obtain an Administrative Assistant Degree within one year. In the classroom, he is no longer bothered by  fluorescent lights or the white board, and he is able to read and comprehend with comfort.

Seeing print distortions is also a symptom of Irlen Syndrome. In Nayla’s case, they kept her from continuing her education…

Nayla suffered from seeing print distortions both on paper and in her everyday environment. She would see after images, pulsating lights, and what she referred to as a “visual snow.” She also suffered from headaches/migraines, sleepiness/fatigue, dizziness, and slight nausea from reading. When Irlen Diagnosticians discovered the severity of her symptoms, they all wondered how she was able to graduate high school. She tried a semester of college, but ultimately found it too hard. She expressed that if the Irlen Spectral Filters helped, her ultimate goal would be to return to college and pursue a degree in social work. Here is what she has to say after receiving the Individual Aid Scholarship and her Irlen Spectral Filters:

These glasses are really helping!! I have found a nice balance. I can’t read with them at all but I found that wearing them throughout the day and around fluoroscent lighting have calmed my eyes enough that I’ve managed to read at night with a dim lighting, sans glasses. I went through 80 pages straight of a novel the other night! I can’t tell you how happy I am and how much it has helped my life already. 

Thank goodness I managed to find you! I am forever grateful. 

I’ve even been able to return to work helping my father at his store, a help he greatly needed. We discovered that using lamps in the office instead of the previous harsh lighting has made a big difference in my overall comfort and ability to work. I know it seems obvious but I just wasn’t even previously really sure of myself enough to ask for help, you know? So, not only have the glasses helped but also your sage advices. I even feel good enough to go back to school. There’s a great program here for interpretation studies that I am in the process of applying to. 

I feel like a pair with the first layer, the dark “Irlen person” lens, one shade lighter would be perfect for every day office use. I am interested in returning to Portland or Salem for a follow up if that is still possible. 

So, one final Thank you! The work you/the foundation are doing really does improve lives. 

Best regards, 

Nayla”

 

We want to thank everyone that has donated to the effort and continues to raise awareness of this little-known condition. There are millions of other people all around the world that are in similar situations, and it is due to the generosity of people all over the world that we are able to step in and help those that need it the most.

 

Please visit www.irlensyndrome.org to learn more about Irlen Syndrome and to make a donation today.

Guest Blog Post by Pooja Santapurum

In late 2016, ISF began a partnership with a nonprofit organization in Ghana called Campaign for Learning Disabilities (CLED). Through this partnership, ISF has been able to introduce educators across the country to information about Irlen Syndrome and how to remedy the condition. As a part of this awareness and training program, program volunteers at CLED gathered data on the incidence of Irlen Syndrome in the country of Ghana. Pooja Santapurum, a senior neuroscience major at Vanderbilt University, headed up this incidence project. We asked Pooja to share with us about her experience in Ghana this summer, and tell us what she learned about Irlen Syndrome in that region.

I began data collection two weeks after my arrival to Kasoa, Ghana. Within 1 week I had already gathered 400+ students’ worth of data. What I found most surprising is how there seems to be less red tape when it comes to getting things done in an academic setting. Collecting data from each of the schools we visited was very easy to do, and the school district department that we had originally sought permission from was very open to the idea of us gathering data from some of its students. We initially set out to collect data from the public schools in the region.

The first school I visited was St. Mary’s Basic School. Walking into the very dimly lit classroom, I saw a sea of blue. Each student was wearing his or her royal blue uniform impatiently waiting for class to begin. What stood out the most, however, was the sheer number of students that were squeezed into such a small space. There were roughly 80 students seated in this classroom, some students practically sitting on top of each other. But this was their norm. In the U.S. a classroom of this size would probably not seat more than 25 students. I knew that this sight would take some getting used to.

Public school in Ghana

Within two days, I was able to visit 3 very different schools and collect data from all the 4th and 5th grade students at each of these schools.

Private school in Ghana

In hopes of determining the prevalence of Irlen syndrome in this region of Ghana, we began data collection with the administration of the Reading Strategies Questionnaire (RSQ), which gives as an idea of what symptoms of Irlen Syndrome are present among these students. More specifically, it assesses each student’s reading difficulties in addition to the amount of physical discomfort of the eyes or head he or she deals with. Though the RSQ only assesses risk, the data we have thus far is, in some ways, very surprising but perhaps expected due to the fairly high rate of Learning Disabilities in this population. Though our target population was 4th and 5th grade students, the age range within these two grades is much larger than I expected. There are students as young as 9, which isn’t unexpected, to as old as 16, which seemed fairly large to me.

For each classroom we entered, we handed each student a sheet of paper to record their answers to each of the questions on the RSQ. I would write on the board what demographic information (age, sex, grade, etc.) they needed to first write on the tops of their sheets of paper. The teacher or the CLED director would then read the questions from the RSQ aloud in front of the classroom, first in English and then furthering explaining the question in Twi to ensure that each student fully understood the question. Each student was able to answer with “Yes,” “No,” or “ST” which stood for sometimes.

The classic blackboard still occupies most classrooms in Ghana

I interviewed a couple of teachers to better assess their perspectives on learning disabilities within the classroom and to get a better idea of how prevalent having a student with a learning disability was. The following are the questions I asked with the responses given by two different teachers as noted:

What percentage of your students do you think have learning disabilities?

R1: 30%

R2: 70%


How is your students’ academic performance compared to what you think it should be or to the national average?

R1: Average for this area.

R2: Not quite impressive; average for public schools but below average compared to all students in Ghana.


What are some common complaints you get from students with reading difficulties?

R1: that they can’t see the words in the board; they have headaches; sometimes they also complain of stomach pain.

R2: that they have visual impairments; many have “seizure disorder,” where it takes them time to pronounce words resulting in pausing when reading; the majority of students have not been taken through phonetics so they don’t have a basis for sounding out words; many don’t really complain because they fear being made fun of by their peers.


What do you think should be done to improve education for students with learning disabilities?

R1: start from the base; make sure that in teaching colleges, teachers are well prepared to handle such issues; have teacher trainings to educate teachers on how best to teach to students with learning disabilities; also, start at the base for learning to read by beginning with pronouncing different sounds and words when teaching reading.

R2: create a reading clinic environment or special schools for specifically helping students with such difficulties; have referral programs where students with reading difficulties are sent to special reading clinics located in central, community locations where they can get the specific help that they need.

Based on these two interviews alone, it is clear that not all teachers have a firm understanding of what it means for a student to have a learning disability (LD). Prior to interviewing these teachers, the knowledge I had been provided with was that the majority of students, especially in public schools, had some form of learning disability, which is really quite astonishing. It is also evident that not a lot has really been done in training these teachers on assessing students with LDs and teaching to students with LDs. I was told by the director of CLED that many of the students with learning disabilities not only fear being made fun of by their peers but also fear being made fun of or punished by their teachers. That is why CLED has fortunately begun pushing for more teacher trainings and parent trainings on what it means to have a LD and what methods can be used to allow for the most success for these students in an academic setting.

 

Pooja with CLED executive director, Padmore Quansah

 

The ISF/CLED partnership is expanding this fall, when Irlen Diagnostician, Jeri LaVigne, will be traveling to Ghana to train all CLED staff as certified Irlen Screeners. Stay tuned for future updates and success stories from our friends in Ghana.

2017 Spring Scholarship Recipients

This month, ISF awarded nearly $4,500 in 2017 spring scholarships to help economically disadvantaged youth and adults receive Irlen diagnostic testing and spectral filters. The 14 scholarship recipients range in age from 11 to 68 years, and represent 9 different states: California, Oregon, Washington, Montana, Texas, Louisiana, Mississippi, North Carolina, and Florida. They are students, veterans, and former civil servants, and they have all been significantly impacted by symptoms of Irlen Syndrome.

Four of our spring scholarship recipients received the exclusive Pat Johnson Memorial Scholarship, reserved specifically for individuals from Texas and the immediate southern states where longtime Irlen diagnostician, Pat Johnson, worked tirelessly for over 20 years to bring Irlen solutions to those who need them most.

One of our recipients is currently home bound due to her extreme sensitivity to light, and another had to drop out of college after just one semester because of her Irlen Syndrome. As all of our spring scholarship recipients receive their Irlen Spectral Filters in the coming month, we look forward to following their progress and hearing how their lives change!

ISF awards scholarships for Irlen services and lab fees to US residents twice a year (fall and spring). Scholarship applications, and information about how to apply, can be obtained from any US Irlen Diagnostician. We are only able to provide these scholarships thanks to the generosity of people like you, so please consider making a donation to the Irlen Syndrome Foundation today.

mobileDonate

2016 A Year In Review

We have been busy this year! Generosity from people like you has helped us change lives, advance research, and spread the word. Read below to find out more about specific projects and programs we funded in 2016, and learn about what we have in store for 2017.

Research At Cornell University

ISF awarded Cornell University neuroscientist, Dr. Adam Anderson, and his team of researchers at the Cognition and Affect Lab an ISF Research Grant to support their current brain imaging research. Dr. Anderson and his team are using fMRI to show that colors alter the speed with which visual stimuli are processed and perceived. They are examining the brain bases of this finding with the hope of providing objective evidence for a widespread role of color in shaping visual sensory cortical processing and its influences on higher-order brain regions.  By influencing how visual sensory cortices communicate with higher brain regions, color filters may regulate brain activity patterns supporting various forms of high level cognition.

15 Individual Scholarship Awards

ISF awarded aid scholarships to 15 individuals this year. These scholarships provided diagnostic testing and Irlen Spectral Filters for individuals who would otherwise not be able to afford Irlen services. Among our group of 2016 scholarship recipients, we had 5 youth from the juvenile justice system, a former law enforcement officer whose on the job brain injury resulted in migraines, vertigo, and seizures that prevent her from working, and a high school student who missed over 50 days of school this year because of migraines and extreme fatigue caused by light sensitivity.

New Pilot School in Philadelphia

ISF awarded an Irlen Pilot School Program Grant to the Mastery Charter School Pickett Campus in Philadelphia, PA. Mastery Charter services a particularly high percentage of at-risk students in grades 6-12, with over 25% of the student body identified as having some type of specific learning disability. As an Irlen Pilot School, Master Charter will implement screening for Irlen Syndrome and provide colored overlays to students who require intervention. Student progress and improvement will be tracked and analyzed over a 1 year intervention period. Find out more about our pilot school program.

Outreach in Ghana

ISF partnered with the nonprofit, CLED – Campaign for Learning Disabilities, to educate teachers in Ghana about Irlen Syndrome and strategies for supporting students with the condition. CLED-Campaign for Learning Disabilities is a grassroot NGO with the goal of helping children with learning disabilities and co-occurring difficulties to improve their learning  and reach their potential so that they can become valued members of their community. CLED trains parents, teachers, and communities on different subjects related to the needs of children with learning disabilities and co-occurring difficulties. We are excited about this new international partnership, and the opportunity to bring solutions for Irlen Syndrome to school children in Ghana.

Our Plans for 2017

In the coming year, ISF plans to double the number of scholarships awarded in 2016, add another Irlen Pilot School to service and support an entire student body, and increase our support of cutting-edge research that will help make assistance for Irlen Syndrome more available. You can make a difference too. Did you know that a $5 gift to ISF is enough to provide colored overlays for 2 children? Your generosity makes our work possible, and changes the lives of hundreds of children and adults every year. MAKE A DONATION

Updates on Irlen Research at Cornell University

From the Desk of Professor Adam Anderson, Director of the Affect and Cognition Lab
October 13, 2016

adam-and-helen

“Color alters brain activity in ways that extend well beyond color perception to
influence brain regions supporting perception, thought, language, and emotion.”

 

Study #1: How Color Affects Brain Activity
We have just finished our first study on color and brain activity. In our efforts to understand the role of color on brain function, we examined how different colors influence brain activity patterns. Well beyond color perception, we found colors have distinct roles not only in altering visual system activity, including the primary visual cortex and the thalamus, but also higher level regions including the parahippocampal gyrus (involved in representing the environment) and the middle temporal gyrus (involved in language processing and motion perception).  We also found colors influence limbic regions involved in emotions and feelings, including the anterior insula (emotional body states) and the ventral tegmental area (VTA, a region that produces Dopamine, a neurochemical that influences reward processing and cognition throughout the cortex).  In sum, color alters brain activity in ways that extend well beyond color perception to influence brain regions supporting perception, thought, language and emotion. Although preliminary, such results provide foundational support for color filters as means to alter brain activity patterns in focal brain regions, and the functions these regions support. These results lay the foundational neuroscience groundwork for future studies looking specifically at Irlen Spectral Filters.

cornell-reesarch

Study #2: How Color Influences Perception, Cognition, and Emotion: Irlen as a Brain-Based Condition
In our current study, we are building upon our earlier findings and undertaking more focused examinations of the influence of color on how information from the eye is represented in the brain, and the transmission of that information to the higher order portions of the brain that support perception, cognition (e.g., language and thought), and emotion. This study also assesses how colors influence brain activity to alter performance on tasks, including perceptual, cognitive and affective judgments. Results from this research will shed light on the neural mechanisms by which color can modulate brain activity and alter brain function.  This study also examines the presence of Irlen Syndrome symptoms in the population at large, their neural bases, and whether these patterns of neural dysregulation are altered by color.  These findings should help establish how, rather than a retinal visual disorder, Irlen Syndrome arises from dysregulated brain networks, with different brain regions supporting specific symptoms.

Help us support research that helps us better understand Irlen Syndrome, visit www.irlensyndrome.org and pledge your support today. The Irlen Syndrome Foundation is a 501(3)(c) charity organization. Donations are tax deductible. Our federal tax ID is 33-0409023.

The ISF Pat Johnson Memorial Scholarship

The Pat Johnson Memorial Scholarship

In Memory of Dr. Pat Johnson, Irlen Diagnostician

Pat Johnson

 

A key mission of the Irlen Syndrome Foundation is to increase accessibility of Irlen services. Dr. Patricia Johnson believed in this mission passionately, and in over two decades with the Irlen organization, she trained thousands of professionals in the Irlen Method across Texas and surrounding southern states. The Pat Johnson Memorial Scholarship, offered by the Irlen Syndrome Foundation, honors Dr. Pat Johnson’s tireless efforts to bring Irlen Syndrome and the Irlen Method to children and adults suffering from Irlen Syndrome. In the spirit of Dr. Johnson’s tenacity, intellectual prowess, and overwhelming desire to change lives for the better, the Pat Johnson Memorial Scholarship will continue her legacy by making Irlen services available to those in need.

Dr. Johnson was with the Irlen organization for 22 years. She was an instrumental force in growing one of the strongest networks of Irlen Practitioners in the world, training Irlen Screeners across the entire great state of Texas, as well as Mississippi, and Louisiana. She was the driving force behind the Texas Irlen Association, and fought hard to get school children access to Irlen services through school district trainings and proposed state legislation. The Irlen Syndrome Foundation aims to keep Dr. Johnson’s mission and spirit alive through the Pat Johnson Memorial Scholarship, which will give individuals in Texas and the surrounding southern states access to Irlen testing and spectral filters.

In 2015 two Pat Johnson Memorial Scholarships were awarded. Please help us keep Pat’s memory and altruistic mission alive. To make a donation to the Irlen Syndrome Foundation’s Pat Johnson Memorial Scholarship Fund, please click the link below or email donate@irlensyndrome.org to talk to someone directly about your contribution.

Donate Online: https://npo.justgive.org/nonprofits/donate.jsp?ein=33-0409023

The Irlen Syndrome Foundation is a 501(3)(c) charity organization. Donations are tax deductible. We are also able to accept donations from “Donor Advised Funds” and Charitable Remainder Trusts. Our federal tax ID is 33-0409023. Our mailing address is 5380 E. Village Rd., Long Beach, CA 90808.

To learn more about the Irlen Syndrome Foundation, please visit: www.irlensyndrome.org

Giving Smarter: Use Required IRA Distributions and Donor-Advised Funds to Give More

Take advantage of alternative funding sources to make your annual charitable gifts. Today, it’s easier than ever to make gifts from your IRA distributions or donor-advised funds, and in doing so, maximize your tax benefits while at the same time support a cause you care about.

Using IRA Distributions

New legislation offers an exciting tax break for retirees. Here’s how it works:
Retirees age 70 1/2 and older can donate up to $100,000 tax free from their IRA each year. This can be a huge benefit for retirees who are required to take an annual distribution from their IRA because IRA distributions are generally treated as taxable income. Under the new legislation, made permanent in the 2015 federal spending and tax package, those assets are excluded from income if the distribution is made directly to charity. The distribution is not included in your income so you avoid the potential negative consequences that regular IRA withdrawals in retirement can create, including taxes on Social Security benefits. In addition, instead of being limited to a lower percentage, as charitable contribution deductions normally are, distributions that are excluded from income are equivalent to a 100% deduction.

Once you turn 70 1/2, the IRS required you to take a minimum distribution from your IRA each year, regardless of whether or not you actually need that income, and these required withdrawals are subject to ordinary income taxes. By making a charitable contribution from your IRA, you can satisfy your required minimum distribution amount without reporting additional income. Make sure you speak with your tax and or financial adviser before making tax or investment decisions to see if donating IRA distributions is right for you.

Donor-Advised Funds

Many financial institutions offer ways for their clients to participate in charitable giving, and one of these ways is through donor-advised funds. These offer donors the convenience of making a single tax-deductible donation, then distributing those funds to the charities of their choice. It allow donors the ease of contributing things other than cash, such as real estate, appreciated securities and non-publicly traded assets. And, it offers donors the ability to grow their donations tax-free and distribute their funds to charities over time. All of this allows for the potential of a higher charitable impact. Ask your financial institution about their available donor-advised funds for more information, and as always, be sure to speak with your tax and or financial adviser before making tax or investment decisions.

 

 

 

What Does ISAW Mean? I See With My Brain.

Irlen Syndrome Awareness Week, affectionately known as ISAW, begins on October 19, 2015. This worldwide awareness effort hopes to bring global attention to the current lack of proper identification of this easily addressed condition. When successfully identified, Irlen Syndrome is easily addressed and corrected through available interventions; however, only a fraction of individuals who suffer from this condition are properly assessed. Instead, the majority are either misdiagnosed with other conditions, such as ADHD and dyslexia, or simply continue to suffer in silence throughout their lifetime.

ISAW 2015 is a grassroots effort. It requires the involvement by every person affected by Irlen Syndrome, every family, every friend. It asks every educator and every allied health professional to be willing to know the symptoms and to keep an eye out for children and adults who might be at risk. Irlen Syndrome is still in the closet. People have never heard of it, don’t think they know anyone who suffers from it, and aren’t aware there is a way to address it.

The acronym, ISAW, has several very relevant and distinct meanings:

  • It stands for Irlen Syndrome Awareness Week
  • It alludes to the fact that Irlen Syndrome can affect what people see on the printed page and in the environment
  • It encourages people to be aware of the symptoms, to acknowledge the prevalence of the condition in their communities, and to see Irlen Syndrome around them

In a purposeful display of irony, ISAW also tries to bring to light the difference between vision and sight. Most people know that if there is a problem with the eyes, it can affect visual acuity, or how clearly you can see. But what many people forget is that the brain, not just the eyes, have a hand in what we see as well. This is vision. The brain is at the end of the visual pathway, and it is the place where signals from visual stimuli are interpreted. What we ultimately “see” is up to our brain, not our eyes. Our eyes are the initial receptor for visual information, but our brain is the final melting pot for that information. If the brain isn’t functioning correctly, we won’t see things accurately. So, the mantra of the individual with Irlen Syndrome should be “I SAW with my brain, not with my eyes.”

ISAW 2015 will be full of outreach efforts around the world that celebrate this message, and with it they will draw attention to key symptoms of Irlen Syndrome and its prevalence within different populations.  Everyone can make a difference in this awareness effort. All you have to do is know the symptoms and tell a friend.

knowthesigns

World Leaders Speak At the International Irlen Conference

conference logo

Every two years, the International Irlen Conference brings together world leaders in the fields of Irlen Syndrome, neuroscience, ophthalmology, education, and psychology. Meet this year’s keynote speakers:

 

KEYNOTE SPEAKERS

 

 

Marcia Reis Guimaraes, MD, PhD, is an ophthalmologist and eye pathologist with an educational background in molecular biology and basic sciences. She is an Assistant Professor of Ophthalmology, Embryology and Pathology at the Universidade de Sao Paulo and Universidade Pitagoras and invited professor of several universities throughout Brazil. She is Clinical Director of the Hospital de Olhos de Minas Gerais in Brazil. Dr. Guimaraes is also Director of the Irlen Clinic in Belo Horizonte, which is located in the Hospital de Olhos. She serves as Research Clinical Professor at the Federal University of Mina Gerais-LPAN (Laboratory Advance Research in clinically Applied Neurovisual Sciences).

 

 

Ricardo Guimaraes, MD, PhD, is a board certified ophthalmologist and founder and Director of the Hospital de Olhos in Minas Garais Brazil, the largest individual private eye clinics in Brazil. Dr. Guimaraes is also Assistant Professor at the Federal University of Minas Gerais (Brazil) and Director of the International Club of Surgery. He serves as President of the Brazilian Society of Refractive Surgery and maintains professional memberships in the Brazilian Society of Ophthalmology, the American Academy of Ophthalmology, and the International Society of Refractive Surgery. He serves on a number of editorial boards, including Highlights of Ophthalmology and Medical Editor for Ocular Surgery News for Latin America, and is currently serving as Honorary Consul of Canada in Minas Gerais, Medical Editor of Ocular Surgery New for Latin America, member of the board of the council of Health School – Universidade Pitagoras, Brazilian Institute of Marketing Economy (IBMEC), and Fundação da Associação Comercial de Minas Gerais and American Chamber of Commerce.

 

 

Jeffrey David Lewine, PhD, is Professor of Translational Neuroscience and Director of Business Development at the Mind Research Network, affiliated with the University of New Mexico. Dr. Lewine’s research uses behavioral and brain imaging methods including magnetoencephalography [MEG], electroencephalography [EEG], magnetic resonance imaging [MRI], and single photon emission computed tomography [SPECT]) to study brain structure and function. He has performed research on a wide range of clinical conditions including autism, attention deficit hyperactivity disorder (ADHD), depression, dyslexia, epilepsy, schizophrenia, post-traumatic stress disorder and traumatic brain injury. These investigations have been funded, in part, by Cure Autism Now, Johnson & Johnson, Illinois Department of Veterans Affairs, March of Dimes Birth Defects Foundation, McDonnell-Pew Program in Cognitive Neuroscience, National Alliance for Research on Schizophrenia and Affective Disorders, Orasi Medical, the National Science Foundation and the National Institutes of Health. Dr. Lewine has previously directed functional brain imaging programs in New Mexico, Utah, Kansas and Illinois. He is a member of the College of Scientific Reviewers for the National Institutes of Health and a member of the executive boards for the American Clinical Magnetoencephalography Society and the International Society for the Advancement of Clinical MEG. Dr. Lewine is the co-author of a textbook on functional brain imaging and he has co-authored more than 100 articles and book chapters.

 

 

Helen L. Irlen, MA, BCPC, LMFT, is a pioneer and global leader in the area of visual processing problems and an internationally recognized educator, researcher, and scholar. She is the founder and Executive Director of the Irlen Institute, which has over 138 affiliated Irlen Centers worldwide. Her method for treating visual processing deficits is used in over 45 countries. She is the author of Reading by the Colors and The Irlen Revolution: A Guide to Changing Your Perception and Your Life. Her newest book is Sports Concussions and Getting Back in the Game…of Life.

 

For more information about the Irlen International Conference, visit the conference website: IIC 2015

New Year. New Name. Renewed Mission

The start of 2015 meant big things for the Irlen Syndrome Foundation. We opened the year with both a new name (we are also known as the Learning Research Association) and a new website. This new website is part of our renewed and expanded mission statement. While the organization has a long history of providing financial assistance to individuals in need of Irlen services, until now, it has not been an active educational body, providing the community with necessary information and resources to better understand and address individuals with Irlen Syndrome. We are proud of this mission, and we hope you’ll enjoy embarking on this adventure with us to raise awareness of Irlen Syndrome, so that no individual may go unidentified, unfairly treated, or unaccepted.

The Irlen Syndrome Foundation is supported by a talented group of individuals who are highly motivated to change the world’s perception of Irlen Syndrome and people who face this challenge. We seek to support parents in their quests to advocate for their children, to educate the public and professionals about the Syndrome and what they can do to make a difference, and to drive change – a change in policies, practices, and perceptions, so that individuals with Irlen Syndrome can have access to available and successful solutions.

On our new website, you’ll find a variety of resources, including downloadable toolkits designed for parents and educators, access to self-tests and research, and links to useful sources of information and support. We invite you to explore our new site and let us know what you think. We hope you help us make a difference in the lives of children and adults with Irlen Syndrome.